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Rare Disease

To Stand Beside Suffering

Editor’s Note: We’re honored to share the following article from our friends at the Courageous Parents Network. To see this article in its original format,

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Colorectal cancer

When the Silence Got Loud

Editor’s Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea, originally written by Bill Phillips, a colorectal cancer

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15 hours ago

Some medical findings can provide especially important clues during the diagnostic process. A pathognomonic sign or symptom is strongly associated with a specific condition, helping healthcare providers distinguish it from other diseases with similar presentations. For people navigating complex or rare conditions, these distinctive findings can be an important piece of the diagnostic puzzle!
#rarewordoftheweek #raredisease #rarediseaseawareness #PatientWorthy
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Some medical findings can provide especially important clues during the diagnostic process. A pathognomonic sign or symptom is strongly associated with a specific condition, helping healthcare providers distinguish it from other diseases with similar presentations. For people navigating complex or rare conditions, these distinctive findings can be an important piece of the diagnostic puzzle!
#RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
17 hours ago

“The Peace of Wild Things

When despair for the world grows in me
and I wake in the night at the least sound
in fear of what my life and my children’s lives may be,
I go and lie down where the wood drake
rests in his beauty on the water, and the great heron feeds.
I come into the peace of wild things
who do not tax their lives with forethought
of grief. I come into the presence of still water.
And I feel above me the day-blind stars
waiting with their light. For a time
I rest in the grace of the world, and am free.”
― Wendell Berry, The Selected Poems of Wendell Berry
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