Systemic lupus erythematosus punishes patients twice. First comes the disease itself, an autoimmune disorder where the body attacks its own tissues, causing debilitating fatigue, joint
As reported on BioSpace, the U.S. Food and Drug Administration (FDA) has approved Partner Therapeutics’ bispecific antibody Bizengri for adults with cholangiocarcinoma harboring an NRG1
Editor’s Note: Patient Worthy is honored to share this submission from Katie DiLorenzo, SVP, Patient and Pharmacy Services, PANTHERx® Rare. If you’re living with a
Mesenchymal stromal cells (MSCs) have tantalized the medical world for years. These versatile immune-modulating cells offer genuine hope for diseases ranging from epidermolysis bullosa, a
Patient Worthy is honored to reprint this selection from The Cancer Dietitian, by Julie Lanford MPH, RD, CSO, LDN. It’s important to know that no single
I am sharing my journey to give a voice to patients who suffer from extreme poly-pathology and are often left behind by the medical system.
For decades, colorectal cancer treatment has followed the same playbook: surgeons remove the tumor, then patients endure months of chemotherapy hoping to catch any remaining
AskBio Inc., a gene therapy company operating independently under Bayer AG, has taken a key step forward in the development of its investigational Parkinson’s disease
Editor’s Note: This story was originally published on Linked-In and is shared with permission by Olga Lucia Torres. In college, a clinician told me I
Enpatoran offers hope for millions suffering from lupus skin manifestations Pharmaceutical company Merck KGaA has announced a significant milestone in lupus treatment research. As reported
As reported on PharmaBiz, Vanda Pharmaceuticals has launched a new clinical trial, known as Thetis, to evaluate whether its neurokinin‑1 (NK‑1) receptor antagonist Nereus (tradipitant)
Editor’s Note: Patient Worthy is honored to present this article, shared with us by our friends at the Seena Magowitz Foundation. When doctors diagnosed Michael
A major breakthrough for the 300 Irish patients living with butterfly skin. For the first time in Ireland, patients battling epidermolysis bullosa, a rare and
Editor’s Note: Patient Worthy is honored to share this story submitted to us by Regina Portnoy, a clinical researcher with over 20 years of experience.
Editor’s Note: Patient Worthy is honored to share this patient story from our friends at Elephants & Tea. To see the story in its original
As shared on drugs.com, Vascarta Inc. has reported encouraging results from a Phase 1b clinical study evaluating its investigational topical/transdermal curcumin gel, VAS-101, for the
Editor’s Note: Patient Worthy is honored to share this article from our friends at the Brighter Hope Foundation. To see the article in its original
Labcorp announced the nationwide availability of Agilent Technologies’ PD-L1 IHC 22C3 pharmDx, the only FDA-approved companion diagnostic designed to identify patients with platinum-resistant ovarian cancer
Today on HAE Awareness Day, we’re recognizing the strength of those living with hereditary angioedema (HAE) — a rare condition that can cause sudden, painful, and unpredictable swelling attacks.
For many, HAE impacts far more than what people can see. It can affect daily routines, relationships, work, school, and the simple comfort of knowing what tomorrow will look like.
Today is about spreading awareness, encouraging understanding, and reminding the HAE community that their experiences matter and their voices deserve to be heard.
#HAEAwarenessDay #HAEAwareness #HAE #Active4HAE #PatientWorthy
One bite can change everything.
For 33 million Americans with food allergies, “just try it” isn’t harmless. It’s anaphylaxis. It’s ER visits. It’s reading every label, carrying epinephrine everywhere, and teaching everyone around you how to save your life.
Food Allergy Awareness Week is about more than awareness. It’s about action:
Ask before you share food.
Read labels, even if you’ve bought it before.
Take “no thank you” seriously.
Learn the signs of anaphylaxis and how to use an EpiPen.
Never pressure someone to eat something.
Inclusion tastes better than exclusion. And safety should never be optional.
#FoodAllergyAwarenessWeek #Anaphylaxis #PatientWorthy
TSC is a genetic disorder that causes benign tumors to grow in the brain, heart, kidneys, lungs, skin, and eyes. 1 million people worldwide live with it. Many spend years searching for answers before diagnosis.
TSC Global Awareness Day is about changing that. See the signs. Fund the research. Support the families navigating appointments, medications, and uncertainty every single day. Because awareness creates earlier diagnosis. Earlier diagnosis creates better outcomes. And no one should face TSC alone.
#TSCGlobalAwarenessDay #TuberousSclerosisComplex #PatientWorthy
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
